Hi there,
Sorry - I had no internet yesterday, nor the energy to get it going. Mostly, I have been in bed, nauseas or worse.
My Macmillan nurse came, and we had a good talk about lots of things. Swimming is off my agenda until the chemo is finished (warm moist atmosphere, potentially full of germs). Polates, would be a good start for me; I have just got to get organised.
I am still upset about my treatment by my ex-GP. However, I have said what I want to say.
I continue to think about the second Manchester Royal Infirmary (MRI) A&E doctor, as well. I had returned to the MRI (two days after a visit scheduled by Dr Sabeti) with newly developed double vision. I do not think I was checked over properly. I recall thinking it was odd that I was sent home to rest when all the manuals say you must get seen by a doctor. I realise that part of the problem was that I was not functioning properly; I barely speak. The first A & E doctor checked me thoroughly, and sadly, I passed all the tests and they rejected the request for a scan. I am disturbed that the development of double vision did not spark the need for a scan. If and when I feel like following this up, I know how to do it.
Other stuff - I showed him photos of me pre-diagnosis: one with Martha and Katy in Berlin (where I was struggling with headaches), and one with Jackie and Louise at hockey. He read the poem that Jackie has written for me, and I have seized it as my goal - all the features she describes are accurate observations - I want to get myself back in action again. Two more bouts of chemo to go.
Good news, of course, that the scan showed that my tumour is responding to treatment. I am grieving that I still have a tumour, but if it is not growing, nor troubling me, then I can live with it. I have to come to terms with this.
continued ...
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