Tuesday, 14 January 2014

Chemo 5

Hi there,
Sorry - I had no internet yesterday, nor the energy to get it going.  Mostly, I have been in bed, nauseas or worse.

My Macmillan nurse came, and we had a good talk about lots of things.  Swimming is off my agenda until the chemo is finished (warm moist atmosphere, potentially full of germs).  Polates, would be a good start for me; I have just got to get organised. 

I am still upset about my treatment by my ex-GP.  However, I have said what I want to say.

I continue to think about the second Manchester Royal Infirmary (MRI) A&E doctor, as well.  I had returned to the MRI (two days after a visit scheduled by Dr Sabeti) with newly developed double vision.  I do not think I was checked over properly.  I recall thinking it was odd that I was sent home to rest when all the manuals say you must get seen by a doctor.  I realise that part of the problem was that I was not functioning properly; I barely speak.  The first A & E doctor checked me thoroughly, and sadly, I passed all the tests and they rejected the request for a scan.  I am disturbed that the development of double vision did not spark the need for a scan. If and when I feel like following this up, I know how to do it.

Other stuff - I showed him photos of me pre-diagnosis:  one with Martha and Katy in Berlin (where I was struggling with headaches), and one with Jackie and Louise at hockey.  He read the poem that Jackie has written for me, and I have seized it as my goal - all the features she describes are accurate observations - I want to get myself back in action again.  Two more bouts of chemo to go.

Good news, of course, that the scan showed that my tumour is responding to treatment.  I am grieving that I still have a tumour, but if it is not growing, nor troubling me, then I can live with it.  I have to come to terms with this. 

continued ...

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