Monday, 25 November 2013

Macmillan meeting

We made it to school in reasonably good shape, this morning.  Martha and I gave her antibiotics to her teacher.  She was feeling tired, but was in good spirits. 

I went to the chemist to collect the rest of her prescription.  It was split into two separate amounts, because it has to be kept in the fridge for less than a week.  I usually get given two bottles and instruction on how to make the second bottle.

I went into Quality Save to buy a birthday card, but couldn't remember why I was in the shop.  I had to walk around until I remembered the purpose of my visit.  I have to say, that this is very frightening.  I was very relieved when I saw the display of cards, and recalled what I was doing there.

I talked to my Macmillan nurse about this, because I have noticed a decline in my memory.  I hope he is correct when he says that it will be partly caused by chemotherapy, and that my memory will improve again.

I have learned that chemotherapy is not a breeze!  We talked through my preparation for the next phase.  Over the next couple of weeks, I have to rebuild my fitness.  I am likely to be ill again after each five day course.  I am not looking forward to this at all!  My next phase begins on 11th December (11/12/13 - an excellent date!  This can never happen again) . 

 I started chemo on 14/11 and I become ill on 16/11.   I stop taking chemo on 18th.  I start to recover on 21/11,

Next month (if it is the same pattern):  start chemo on 12/12, become ill on 14/12.  Stop taking chemo on 16th.  Recover on 19/12. 

Steroids - I am so nearly there!  I am not quite through my "dip"; my left eye remains swollen.  In a few days, I hope to start taking one quarter milligram on alternate days.  The next step after that will be to stop completely.  I have to plan this into my chemo programme, so that I don't get a clash of steroid and chemotherapy side effects.

I can't get my head around integrating steroid reduction with chemo programme - I will continue this tomorrow.  I would dearly love to be free of steroids through the Christmas holiday.  Also, if I follow the same pattern, I will be ill through the end of term.

Have a good week
loads of love
Sarah xxxx