I sort out all my drugs into my dispenser. During this process I decide to put all the steroids in one jar. Only then, I remember that they are different sized tablets. Some are 2mg and some are 0.5mg; I can't tell them apart. One type is bigger than the other, but I do not know if this is a 2mg or 0.5 mg. I have to call the Christie hotline for help. They advise me to wait until my appointment and check when I get to my suite 5. Someone from suite 5 calls me and tells me to take 3 x 0.5 mg, and after a chat she understands that I don't know which tablet is which. We agree that I should take one tablet, and then check at the pharmacy later. It turns out that the biggest table is the 0.5 mg, so I am required to take two more with my lunch, later in the day. All done.
I go out for my walk - my old run today, at a good pace.
Katy goes to cricket course
Martha is still sleeping. I help Katy get ready for a course at Old Trafford. She is going with her friend Rosy, and Rosy's mum is taking them to the course. I drop her at their house at 9.15 am. At the end of the course, she has really enjoyed it. Katy and Rosy were the only girls - no surprises there!
Martha plays with Lauren
On my way to Christie's we drop Martha off at her girl guide friend's house. She is feeling a little shy, but settles in quickly.
Radiotherapy appointment on time
I had a very quick appointment today. Home in time for a good sleep. I have been very tired because I did not sleep well last night.
Afternoon with Martha, Macmillan Nurse and Community nurse
Martha comes home at 2pm, tied for a three legged race. She settles to watch TV for a while.
I have a visit from a Macmillan Nurse, who was very friendly and supportive. He will support me through whatever comes my way. He has previously worked in a hospice so is skilled in supporting people who are managing the end of their lives. He was also very positive, and we are both committed to my full recovery. He has referred me for support from a benefits expert, so that we can find any funds that I can get help from.
A community nurse arrives during the meeting, and we check in, and she quickly checks out. No problems at all today.
Martha and I then go on a skate (Martha) and walk (me) to the doctor's surgery. I have a letter giving doc permission to share my personal information with my mum's insurance company. I hand in the form (this is for my mum) and collect a sick note. The sick note is extended from 1 Sept to 30 Nov. This is too long a time for me, so I return it and ask for it to be to 31 October. I am hoping to return to work at half term. Let's wait and see...
We then have plans to go to the park on our own, but bump into Katy. In the end, we all go to the park and have our tea at a picnic bench.
Good night everyone
loads of love
Sarah xxx
