I have finished radiotherapy. I haven't felt like celebrating yet because of illness. I am hoping to take Martha and Katy to Croma ( with Lizzie's vouchers) to celebrate over the weekend.
I had my meeting with consultant and this is what happens next.
1) I take no drugs (except I have been put back on steroids since this meeting)
2) I return for an appointment with consultant in four weeks.
3) I get a new chemotherapy regime at this appointment. I believe it will be 5 sessions per month, in tablet form,
4) I have an MRI scan in 3 months to assess my progress.
5) It is OK for me to start running when I feel up to it. My consultant did say I had to start small and build up to it, and I told her I have been walking 3 miles every day except for last week. From this, she said I could get started when I was ready. I asked about swimming and the answer was no - I have to wait because of the burn on my scalp - I cannot put scalp in chlorinated water.
6) I have new nurse - Liz Malloy 0161-446-8441
Have a good weekend everyone
lots of love
Sarah xxxx
Friday, 13 September 2013
On the mend
On the mend
I am back on steroids and starting to feel much better again. I do not like the idea that I am dependent on them. When you are on steroids your body stops producing its own steroids. When my steroids have been withdrawn (we have done this twice now), my body is not kicking back in with my own steroids. I become very ill, as a result of this.
The illness is difficult to describe. Firstly, I have overwhelming nausea ( I have taken loads of anti-sickness drugs, so I am worrying a constipation again!). I managed to avoid being sick, but the journey was unpleasant. I feel extremely tired. I cannot sleep properly because my fever is rising and falling. I am shivering, and then feeling extremely hot, over and over again. My arms and legs feel lifeless and weak. I feel ill. Sitting down, I have my head in my hands and feel very poorly.
I am seen by my nurse, and sent for another blood test, to check for an infection. The woman who took the blood walked me back to the nurse because she was worried about me. My nurse does my observations - blood test, pulse, blood pressure, oxygen levels, blood sugar levels (another needle). A doctor comes to visit, and concludes that the problem is the steroids. I am given a prescription to continue taking steroids.
I go to my radiotherapy session, which was grim because I feel sick. I am pinned to the bed, and agree with radiotherapists that I will wave if I need to be relieved due to sickness. I manage to do the whole session (playing Queen - Jazz).
I have a bite to eat in café so I can take the steroids. Go home to bed and sleep properly for a few hours.
My mum ends up not going home, as planned. She did leave last night, but sadly will miss my step grandmother's funeral (which is in Cardiff).
I feel a lot better today. I am still a bit ropy, but improving. In bed, but brain is now working again!
I am back on steroids and starting to feel much better again. I do not like the idea that I am dependent on them. When you are on steroids your body stops producing its own steroids. When my steroids have been withdrawn (we have done this twice now), my body is not kicking back in with my own steroids. I become very ill, as a result of this.
The illness is difficult to describe. Firstly, I have overwhelming nausea ( I have taken loads of anti-sickness drugs, so I am worrying a constipation again!). I managed to avoid being sick, but the journey was unpleasant. I feel extremely tired. I cannot sleep properly because my fever is rising and falling. I am shivering, and then feeling extremely hot, over and over again. My arms and legs feel lifeless and weak. I feel ill. Sitting down, I have my head in my hands and feel very poorly.
I am seen by my nurse, and sent for another blood test, to check for an infection. The woman who took the blood walked me back to the nurse because she was worried about me. My nurse does my observations - blood test, pulse, blood pressure, oxygen levels, blood sugar levels (another needle). A doctor comes to visit, and concludes that the problem is the steroids. I am given a prescription to continue taking steroids.
I go to my radiotherapy session, which was grim because I feel sick. I am pinned to the bed, and agree with radiotherapists that I will wave if I need to be relieved due to sickness. I manage to do the whole session (playing Queen - Jazz).
I have a bite to eat in café so I can take the steroids. Go home to bed and sleep properly for a few hours.
My mum ends up not going home, as planned. She did leave last night, but sadly will miss my step grandmother's funeral (which is in Cardiff).
I feel a lot better today. I am still a bit ropy, but improving. In bed, but brain is now working again!
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