Friday, 21 June 2013

Hi all, I know that you are wondering what happened to day.  I know you care.  Do not phone me or text because I cannot reply at the moment - very tired.
It is an aggressive tumour.  It won't spread to my body.  It is on the LHS of brain, in the front - the behaviour and speech section.
They will operate early next week (or possibly week after)  I don't know when.
They will remove as much of the mass as possible.  I will have a small part of head shaved, a hole cut in skull.
There is a 6 - 7 % risk of death, which is normal operating risk for someone under a general anaesthetic.
I will spend 3 - 4 days in hospital post operatively.
The operation may affect my speech - the swelling may mean that I cannot talk, and that I cannot understand what is being said to me. 
After the op they will make a biopsy and decide what happens next.  This may be radiotherapy and/or chemotherapy.
At this point the doctors can advise on future prospects.
They are dealing with the removal for a full recovery.

Yes, I am scared! My mum arrives tomorrow.  Max has been brilliant (goes today) and Dave truly outstanding.  Bev is coming too.  I will let you know when it is good to call. 
Another midnight BLOG.  Steroids are amazing and I am not complaining at all - I am delighted to have pain free nights.
I thought I would describe day 1 of diagnosis.  18 June, I think.
Dave and I took Martha and Katy to Anna's for breakfast and school.  
Hi, this is my first attempt at Blogging.  My aim is to share my progress in being treated for a brain tumour, that was diagnosed yesterday.  This means you can keep up with what is going on.  I hope this Blog will be short and fun and that I emerge as my old self, happy and active.

Right now, I wait for an appointment at Hope Hospital, to find out what the tumour is and how they propose to treat it.

The steroid treatment has improved my life instantly.  The steroids have reduced the inflammation in the brain.  This has improved my vision and energy levels.  I am taking 8 mg twice a day.  Also, some thing that stops the steroids damaging my stomach.

Mum's tumour

Martha and Katy have seen a picture of the tumour and are coming to terms with it in their own ways.  We are going to give it a name, and then I will put photo on BLOG (if my computer skills allow me!!!)