Tuesday, 25 June 2013

Night night, sleep tight!


Cake




















This is Martha and Katy eating some lemon drizzle cake.  I didn't own any pyjamas, and now I do!  Margie sent over pyjamas, nighty and dressing gown, and made a melt in your cake.  Katy said, "I like the outside, because it has all the icing on it."  Thanks Margie.


Colin also sent over a recording machine.  We will be recording our description of photographs, and Martha and Katy will be able to listen to these at times when I am away or out of touch.

Prayer Bev

Operation Day Global Prayer

On Wednesday, tomorrow, sister Sarah goes into Hope Hospital Manchester at 7am for the safe removal of 'Shirley Temple' the brain tumour, please join family and friends in a global prayer from 7am and throughout the day speaking out our healing prayer for Sarah.

To be spoken aloud by one and all as many times as you like.

In Jesus name we ask our heavenly Dad to watch over Sarah and all those close to her.
In Jesus name, I speak calmness and peace over you. May you know the love that surrounds you.
In Jesus name, I speak wisdom and steady hands over the surgical and nursing team. May they have insight and knowledge to do what is right for you.
In Jesus name, I ask the army of healing angels to touch your entire body so that your brain will be protected from harm and you will be renewed as at the time of your birth.

You have touched so many hearts and now we all gather together and touch yours.
As the golden arrows reign down from heaven with love, peace, calmness, compassion, understanding and nerves of steel, we love you and bless you especially this day.

Be strong for The Lord is with you.
In Jesus name, BE HEALED.

A poem about Shirley by anonymous


Shirley

Shirley I hate you so,

As you hurt and grow

 

Your evil powers,

Wreck and ruin my mum

You’re like a big fat bum                                                                                 

 

Once you’re out (YAY),

Our mum won’t be able to say (anything)

But you can’t stop our love (humph)

 

NO MORE SHIRLEY, NO MORE SHIRLEY

                            YAY!

Aphasia - I am likely to experience this after the operation.


About aphasia

Aphasia is a communication disability which occurs when the communication centres of the brain are damaged. It is usually caused by stroke, but can also be caused by brain haemorrhage, head injury or tumours.


What does having aphasia mean?

Each person with aphasia experiences it differently. Some people cannot speak at all; some people have just a few words. Others can no longer read, write or use numbers.
Everyday activities such as having a conversation, answering the phone, watching television, may suddenly become a source of profound frustration and anxiety both for the person with aphasia and for their families, friends and carers.

How many people have aphasia?

Aphasia is more common than you would think. Every 11 minutes three people in the UK have a stroke. About a third of those people will have aphasia. In addition there are people who have aphasia through brain injury or tumour. So you may not have heard of aphasia but you probably know someone who has it – perhaps a relative or a friend.

Dysphasia

Aphasia is sometimes known as dysphasia. They both mean the same thing.

Types of aphasia

If you or a relative has got aphasia, you may have been told you have a special type of aphasia. This is dependent on which communication centres of the brain are damaged. For example,
Broca's Aphasia is when a person speaks with short sentences that make sense but require great effort.
Wernicke’s aphasia is when a person speaks in long sentences that may not have meaning or may even make up words.
Global aphasia is when the aphasia is very severe.

Sarah's aphasia
My interpretation:  When the surgeon removes Shirley, she will damage or move parts of my brain.  Shirley is based in the part of my brain that is responsible for speech and behaviour.  After the op, the brain will be swollen.  In this condition it may not connect properly.  As it shrinks back, it will join up properly and start to function properly again.  Before it heals, all the connections may be incorrect, and who knows what will happen!  Wish me luck... 

Tips for supporting someone with aphasia
 
 
 
People with aphasia may find it difficult to:
  • take part in a conversation
  • talk in a group or noisy environment
  • read a book or magazine or road sign
  • understand or tell jokes
  • follow the television or radio
  • write a letter or fill in a form
  • use the telephone
  • use numbers and money
  • say their own name or the names of their family
  • express their immediate needs or ideas or words
  • go outHa ha - this all looks like me as I am fit and well!!!!
Friends and family living with aphasia may find it hard to:
  • slow down
  • resist finishing sentences
  • adapt the way they communicate
  • keep the conversation going
  • understand what a person is saying
  • know what to do