Thursday, 1 August 2013

My drugs regime linked to radiotherapy programme.


“6 Fields Brain” – radiotherapy and chemotherapy programme.


Date
Time of appointment
Last time to eat
Time of anti-sickness tablet
Time of chemotherapy tablet
Co---trimoxazole (antibiotic)
Allowed to eat
Fri 2/8/13
1500
1000
1300
1400
 
1500 - 1600
Mon 5/8/13
1450
0950
1250
1350
Take 2 x 480mg
1450 - 1550
Tues 6/8/13
1030
Do not eat
0830
0900 - 0930
 
1030 - 1130
Wed 7/8/13
1530
1050
1350
 1450
Take 2 x 480 mg
1550 - 1650
Thurs 8/8/13
0945
Do not eat
0745
0815-0845
 
0945-1045
Fri 9/8/13
1345
Do not eat
1145
1215 - 1245
Take 2 x 480 mg
1345 - 1445
Weekly programme
 
 
 
 
 
 
Mon/Tues/Thurs/Fri
1125
Do not eat
0925
0955-1025
 
1125 - 1225
Wed
1430
1330
1230
1330
 
1430 - 1530
Wed
Meet consultant
 
 
 
 
 

This programme continues until 12 September 2013

Drugs regime

Chemotherapy –              Temozolomide                                  Take once a day before radiotherapy.

Antibiotic –                         Co-trimoxazole                                 2 x 480 mg every Mon Wed and Fri

Anti-sickness -                   Ondansetron                     Take one every day 30 mins before chemotherapy tablet

Anti-sickness -                   Metoclopramide              Take one tablet up to three times a day.

Steroid -                               Dexamethasone              1 x 2mg every morning with food.(ask about how to take this when on morning appointment)

Stomach protector          Omeprazole                       Take every morning before breakfast

Start of radiotherapy programme. Session 1 of 30 ...


Radiotherapy programme starts

I shall begin with a little aside.  When I gave birth to Katy I had a cleaner, who helped me at home once a week.  Whilst the standards of cleaning were excellent,  I ended up letting her go.  She was training to be a psychotherapist…

I arrive promptly with Louise, who has kindly given me a lift.  We are guided immediately to Ian at the radiotherapy desk, who then works through my dates and times for the coming week, and puts me down for a regular slot from the 9th August onwards.  I have a mixture of different times to attend over this week, and then from the 9th I have the same time appointment each day.

We sit down to wait for the appointment, and very quickly, I am taken for a preparation interview.  In this meeting we establish what is going to happen, the potential side effects, and that I have not got my chemotherapy drugs yet.  My attached nurse has the day off, and has left me a note with some written guidance on preparing correctly for each appointment. 

Come back in an hour

I am asked to wait for the appointment, however, the nurse returns to tell me  that I have to take the chemotherapy drugs one hour before the radiotherapy.  A student nurse delivers the drugs, which I take, and then wander off to read the paper in the garden.

Cancer care centre

However, on the way to the garden, I find a cancer help centre, and go in to ask about using supplements during treatment.  I am guided to another department, where I have a long conversation with Anita, who tells me that they cannot guide me on diet.  She tells me that they only help people who are inmates, and people who have head and neck radiotherapy.  Her manner indicates that she does not think that this is me, and looks very surprised when I say, that is me.  I just can’t help looking well!

So, I find myself talking to a woman that I vaguely recognise, who asks me if she knows me already.  I ask my usual question “do you play hockey” to which she answers “no”.  And she quickly remembers that she was once my cleaner.  Yes, she was Lynn, my old cleaner.  Lynn is counselling me, in preparation for my first radiotherapy appointment, and how I want to laugh out loud and tell how it was …

When I return for my appointment, I am accompanied by Lynn.  Lynn  has given me a stress star to squeeze and breathe to.  It has five points on it that I can use to highlight people I love.  “It was made with love”.  She talks about fundraising, and I tell her that I have been fundraising for Christies for some time.  Next event – the 2015 London Marathon.   I have been told that my mask is a “shield”, and that it is there to protect me and help staff be precise in their work with the x-ray lasers.  I am taught some relaxation techniques like lifting my heels and then letting them relax, whilst breathing out slowly.   “Squeeze your knees together; and now relax.  Breathe out slowly”. 
 

Through my appointment, I have Lynn holding my hand and guiding me through each stage of it.  The help I found most useful was that she did tell me what they were doing and why.  I am fixed to a bench with my eyes shut, so to be given this information, really helped me to pace myself;  “you are over half way” was a joyous piece of information.  Lynn of course disappears for the actual x-ray part of the process, and then returns as the staff make adjustments to my position, and set up machine for next x-ray.

Radiotherapy session 1

So, what happens?  Bear in mind that I have my eyes closed.  They have a series of x-rays to perform.  The bench that I am lying on moves me into the correct position.  This feels like a slide, or for some x-rays, this was a juddering sideways (it felt like it was sideways, but I don’t know).  The staff are putting something on my “shield” (sorry the name has escaped me, maybe a diode??) – they do this for every x-ray that they perform.  At one point something is touching my neck and I murmer for them to move it (I cannot open my mouth).  This is done happily.

For all the x-rays, the staff are very careful to check every measurement over and over again, and they do not proceed until they are confident that they have the correct measurements and direction of x-ray beam.

When the x-ray is taken, I see light blue flickering light through my eye lids.  I think I am being lit up like someone in a giant magic experiment.   Or being recreated, like Hugh Jackman in the film, "The Prestige"  (This is a film that I would recommend - it is the story of two competing magicians.  Michael Caine also plays a key role in the film).

I am concentrating on my breathing.  Deep breath in, and then slow exhale.  This is working for me and feel relaxed.  Lynn mentions “Hern” (not Herm) and I am annoyed by this.

 And it is all over.  It has taken about 20 minutes, but Lynn tells me that this is the longest session, and as I proceed, the sessions will get shorter.

I still have Lynn talking to me, outside the radiotherapy room.  I tell her that I think I can do it well tomorrow on my own.  She says that she “knows I can”.

In the toilet after the event, I can see in the mirror that my “shield” is imprinted on my face.  I have a grid across my nose and my forehead.