beautiful cobwebs

After my chemotherapy panic, I take Martha and Katy to school.  Martha is very upset and feeling like she cannot settle into school.  She doesn't feel well, and she cries all the way to school.  We see her teachers, who are happy to help her.  We agree that they can phone me, if she needs to come home.  I do not get a call.

Old Sport England and Youth Sport Trust pal, Barbara Wilson joins me for my walk.  This was our point of beauty on today's walk.  After the fog had lifted, the cobwebs were holding droplets of water.  The paths were lined with sparkling decorations. 

After a good chat, I head off to bed and sleep through to lunchtime.

My afternoon appointment goes well, except that I put my ipod on random, and it was playing me a chapter from Enid Blyton's  Famous Five.   I will stick to albums from now on!

My appointment with consultant goes well, and I get home in time for 4.30 pm piano lesson.  Martha is learning to play Fur Elise (Beethoven).  I learned this when I was being taught piano.  Katy has been practicing so much, her music is sounding very pretty.

My mum cooks me tea, with a potato omelette.  I am then able to cook tea for the girls and my mum! 

Katy is very difficult tonight.  I have to set up a sticker system for her tomorrow, to help her focus on good behaviour.

lots of love to you all
Sarah xxx

Chemotherapy tablets

I am an intelligent person.  However, I have discovered today that I have mucked up my chemotherapy programme.  I have talked to my specialist nurse (I was in tears), who says not to worry, because I have taken some drugs every day.

If you recall, I picked up a repeat prescription yesterday.  There were two chemotherapy tablets: one 5mg and one 140mg.  In sorting out my bag of drugs, I discover that I had been prescribed two tablets all along.  I was not aware of this.  It does not say it on any label anywhere, that there are two bottles of chemo drugs to take.  I feel completely stupid.

What has happened is that I have taken one tablet each day.  Some days this has been 140 mg and some days it has been 5 mg.  I have run out of 5mg tablets and have eight 140 mg tablets left.  How I wish I had run out of 140mg and not 5mg!

Now, I must take the full dose until the end of my radiotherapy programme.  My nurse says the radiotherapy is the main form of treatment right now.

I am worried that this will make me feel sick.  Although, my mum rightly points out that my sickness has corresponded with my eating programme, and definitely does not correlate with when I was taking the 140mg tablet, because I would have been sick for much longer periods of time.  I have to let this worry go (or I will make myself feel sick).

I go to see my consultant today (with my nurse).  We will get organised again!

Meeting with consultant - good
I met with my consultant this afternoon. She was completely positive about my chemotherapy situation.  I have attended all the radiotherapy appointments and I am responding well to treatment.  I did not ask what this means - I will do this another day.  I remain on chemotherapy for another six months.  I have been taking chemotherapy every day.  They are very happy with me. 

They concluded for themselves that it would be good to feed back to the pharmacy that tablets that come in two separate bottles should be marked as "part" or "1 out of 2".  If this had been the case, I would have known to take two tablets and not one.

All is well.  Phew!

Steroids
I told my consultant about my headaches and swelling around my eye.  With this information, she has asked me to continue to reduce the dose.  I go down to half a milligram.