In the morning, I am up early. Claire Hinsley-Mo recommended her cleaner to me, and she started at 8am. Almost immediately, she gets going at a great pace of work. When I return, after the school run, she continues. At the end of her first visit, I am delighted by the transformation of my house. We have a way to go, before it is clean again, but I can see that we will get there. I manage to clear up a few loose ends too - I go through a pile of papers and throw out loads of paper. I also discover our War Horse Tickets tucked away in there. I was lucky to find them!
Macmillan Nurse
My nurse visits at 11am. We have a good talk about lots of things. I find him very helpful. I like the way he approaches our conversation. I feel comfortable talking completely honestly.
We talk about my letter to the practice manager at my local surgery. We agree that my goal is that the surgery reflects on my case and learns from it.
I do not expect the surgery to discover that they could have made a correct diagnosis sooner. The hospital have told me many times, that brain tumours are often mistaken for depression. The symptoms are very similar.
What I want explored are:
- the attitude of my GP to me and my case (she was persistently rude to me)
- the communication between doctors (it appears that there was no communication between doctors that I saw at the surgery - I would like to see a systematic approach that would ensure that doctors share information and possible diagnosis')
- the views of the student doctor who observed my consultations with both doctors. One was trying to get me a scan; the other was shooing me out for time wasting.
My nurse has offered to look at the letter to check the language before I send it. This is very helpful back up to me.
During his visit, Ewa finishes and leaves. I will text her to say a big thank you.
Off to bed
I have lunch and settle into bed. I wake to pick up Martha from school. Katy is at choir.
Martha and I head off to Oxfam to get some birthday cards. Martha then goes home on her own, with my key, while I go to pick up Katy from school. Martha is getting so grown up!
At school, I go upstairs to get Martha's bag. Half way up, I am exhausted - I am out of breath and really struggling to ascend the stairs. This is a big point of learning for me. I want to get back to work, but I can't do it until I can get around the school properly.
Tea, Piano and Bed
I manage a more nutritious meal tonight. It was intended to be chicken kiev, but once the chicken had thawed, I discovered that it was chicken pieces, not breast. I do chicken strips in breadcrumbs with garlic butter on-the-side, with a baked potato. No veg - I will add this back in to the menu soon!!! Katy and Martha liked it in the end.
Have a good day
lots of love
Sarah :)
