Not surprisingly, I have been tired today. My day has been a simple blend of cooking meals, doing the washing, sleeping and nit checking. It peaks in the evening with Katy getting timed in a swimming club gala. Martha was not well enough to join in.
Steroids
I feel OK. I think I am through the dip that comes with reducing my steroid dose. I am pleased about this, because it shows me that my body can adjust, and produce the steroids that I need to be able to function properly. I am going to reduce my steroids again tomorrow, to 0.5 mcg. We have a trip to London on Halloween, and I do not want to be in a dip at that stage; I want to feel good for the journey and our activities. My plan is to drop to 0.5 mcg tomorrow. I go for my chemotherapy appointment on Wednesday. I will discuss this drop with my consultant at this appointment, and if she thinks it is ok, I will continue on 0.5 mcg; if she doesn't think I should be cutting down right now, then I will increase it again to 0.75 mcg. I don't know if that makes sense to you, but it does to me :) I have discussed this with my Macmillan nurse.
Sleeping long
I sleep for a couple of hours today. I could have stayed asleep for a lot longer, but there is a limit to the amount of time that two girls can stay quiet. I am woken by Katy printing from my PC. She has made me a beautiful picture of a rainbow over the sea, with "Mum" written through it.
Homework
Martha has finished her homework for the weekend (phew). She has not kept up to date with her news journal. She is nearly a week behind with this. She has to keep a news journal for a month. She continues to have a terrible cough.
Wishing you all a good week
loads of love
Sarah xxx
