No walk today - I have a bad headache and go home to get paracetemol.
I fall asleep watching TWS (The Wright Stuff), and wake at 11.30am. I panic, thinking that I have slept through, and that I have missed my appointment with my Macmillan nurse. He arrives at this moment, so I am half asleep, no scarf, need a wee and totally unprepared to meet him!
It is good timing for a visit, because I don't feel well. We conclude that it is my steroids. My plan had been to reduce from 0.75 mcg to 0.5 mcg, at the weekend. It is agreed that I persist with 0.75 mcg until I feel better. Or, if I do not feel better, that I increase the dose back up to 1mcg. We talk about lots of things: Martha and Katy, travel insurance claim, my letter to the doctor's, my fears for the future, his visit to my doctor's surgery, chemotherapy - next phase ... He decides to come back next week, his main aim is to check how I am getting on with the steroids.
Lunch - I have Tanya's chilliless chilli for lunch. I add some fresh chilli :) Thanks loads, I enjoyed it.
In the afternoon, I potter about. Being home, sick and poorly, is a great way to get spring cleaning done. I empty Martha's shelves and reorganise all the games. I syphon off some activities to sell, and some for the charity shop. She won't miss any of it. I also find an activity book about dragons, that Katy is really excited by.
Katy's knee
Katy has taken maximum dose of ibuprofen, and is walking more normally on her knee. I rang the doctors for an appointment on Monday, and was told that the only doctor available was Doctor Black, so (if Katy needs to see the Doctor) I have to ring on Monday to try for Tuesday. In the end, I am going to have to change surgery, because Katy is missing out on seeing a doctor, because I don't want to see Doctor Black. This is not fair to Katy.
Katy comes home with a merit certificate for her art work, and a level 2 bikeability badge. She has a great report, and her eyes are bright with pride. Lovely to see.
Martha walked to the park with friends from her class. There were about ten of them, a small crowd, all fizzing along Beech Road to the park.
Gremlins
We finish watching Gremlins. Martha and Katy love the film. Gremlins 2 is on order! We finish off reading and settle down to sleep.
I hope to sleep well tonight.
Have a great weekend
love
Sarah xxx
Just catching up n the last few days of the blog, gosh a lot for you to deal with , no wonder you are whacked. Sounds like your clearing out is going well,when you are staying at my place next month, feel free to attack any of my cupboards !!! Hope katys knee feels better soon, she's so active . Ill call for a chat this weekend . Hx
ReplyDeleteHi Sarah - Alan here. I just wanted to say thanks so much for sending the congratulations card. It was incredibly thoughtful of you to think about me. Very relieved to have finally finished my doctorate, as you can imagine. I also wanted to say sorry I haven't posted on here before - I've been really stressed and a bit single-minded in recent months, and haven't been very good about thinking about other things, but of course Sally (and Helen, Chris and Gee) have been keeping me updated on your news. We all talk about you and the girls a lot. I've been hearing all about your progress, and you're clearly doing amazingly well. Now that we have some free time Sally and I are heading off to Chile & Argentina for a while (we leave on October 15th) but once we get back it would be great to see you. Lots of love, Alan
ReplyDeleteI meant to tell you that we changed from Dr Black's surgery.... your experience was the very last straw after several unsatisfactory communications/consultations/letters/diagnosis over the years we had been there. So I don't blame you from wanting to steer clear with Katy. We all moved to Dr Ratcliffe at the Health centre and so far all extremely positive. But if you want any further support with your feedback to Dr Black et al, let me know and I'll try to help. It's something I feel very strongly about. XX
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