Wednesday, 4 September 2013

Chemotherapy tablets

I am an intelligent person.  However, I have discovered today that I have mucked up my chemotherapy programme.  I have talked to my specialist nurse (I was in tears), who says not to worry, because I have taken some drugs every day.

If you recall, I picked up a repeat prescription yesterday.  There were two chemotherapy tablets: one 5mg and one 140mg.  In sorting out my bag of drugs, I discover that I had been prescribed two tablets all along.  I was not aware of this.  It does not say it on any label anywhere, that there are two bottles of chemo drugs to take.  I feel completely stupid.

What has happened is that I have taken one tablet each day.  Some days this has been 140 mg and some days it has been 5 mg.  I have run out of 5mg tablets and have eight 140 mg tablets left.  How I wish I had run out of 140mg and not 5mg!

Now, I must take the full dose until the end of my radiotherapy programme.  My nurse says the radiotherapy is the main form of treatment right now.

I am worried that this will make me feel sick.  Although, my mum rightly points out that my sickness has corresponded with my eating programme, and definitely does not correlate with when I was taking the 140mg tablet, because I would have been sick for much longer periods of time.  I have to let this worry go (or I will make myself feel sick).

I go to see my consultant today (with my nurse).  We will get organised again!

Meeting with consultant - good
I met with my consultant this afternoon. She was completely positive about my chemotherapy situation.  I have attended all the radiotherapy appointments and I am responding well to treatment.  I did not ask what this means - I will do this another day.  I remain on chemotherapy for another six months.  I have been taking chemotherapy every day.  They are very happy with me. 

They concluded for themselves that it would be good to feed back to the pharmacy that tablets that come in two separate bottles should be marked as "part" or "1 out of 2".  If this had been the case, I would have known to take two tablets and not one.

All is well.  Phew!

Steroids
I told my consultant about my headaches and swelling around my eye.  With this information, she has asked me to continue to reduce the dose.  I go down to half a milligram.

2 comments:

  1. Sounds really complicated Sarah...why 2 bottles/doses...and how were you supposed to know. But please dont beat yourself up for it....hope it goes well from now on. İ read your blog every day Sarah and am alternately humbled and inspired by your positive approach. All those planning skills are being put to good use too. Not much further now xxx

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  2. Well done for getting sorted. It sounds like no one explained what the dose was and how to take it. That's basic customer service surely! Anyway, I'd stick to the positives, the consultant us pleased with you and your progress and it's all sorted out now.

    Keep positive.

    Love Lou xx

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