Wednesday, 10 July 2013

Questions for oncology - neurology meeting 11 July 2013 9.30am


Questions for oncology meeting

I need to write a list of questions to ask when I attend the oncology meeting tomorrow. 
 
  • What is the treatment?
  • What are the effects?
  • Can I go to Christies, because it is more local to me?
  • new cancer treatments - any suitable for me to try?
  • what has caused my muscle loss - is it steroids or just lack of exercise?
  • physio to help build muscle strength?
  • alternative therapies and diet (to use in addition to radiotherapy)
  • When will it start?
  • Relating to the effects of the treatment when can I go back to work
  • How long does it take for me to recover?
  • Where do I go for ongoing support?  Where do I go for any questions that can't be answered here?
  • Support for my children?
  • If they find the chromosome what happens with chemo?  Is it a good thing?
  • I have asked if I can fly in an aeroplane, and this is possible.  I want to join Martha, Katy and Dave on Herm Island, if I can.  The registrar advised that I would inform my travel insurance that I have had a major op, and ensure that local hospital could help if required.  Again, this is a question for the oncologist.  If radiotherapy has to start before holiday, then the answer will of course be negative
Please send me some tips.  Thank you.   love from Sarah xxxxxxx  
Posted by at

4 comments:

  1. Unknown10 July 2013 at 18:11

    Maybe it's too early but I heard on the radio the other morning they have a brand new cancer treatment centre, that is leading hhe world in individual treatments, will check out where and send you info.
    Also you are such a physical person and get such pleasure out of exercise and feeling fit. I know you have your jelly legs , can they get you physio so you start rebuilding your strength ? Hx

    ReplyDelete
  2. AlanM10 July 2013 at 18:42

    Only thought I had was to enquire about being included on any new drug trials if appropriate.
    Sx

    ReplyDelete
  3. Unknown10 July 2013 at 22:18

    Heya Sarah. It's Adam's Dad in Jersey and I know a lot about travel insurance.

    I say that the benefit of your visit to Herm will outweigh the cost of a lost suitcase or two Indeed, if I am wrong, I will personally indemnify you.

    My strong advice is to discard the usual for the unusual and live life to the full. At this time you are the only one in control.

    Much love to your Mum and Martha & Katie.

    Jersey Seals XXXXXX (For ever)

    ReplyDelete
  4. Unknown10 July 2013 at 22:27

    Subject naturally to the programme of radiotherapy set by your oncologist. Just ask her for her opinion. XXXXX

    ReplyDelete

Subscribe to: Post Comments (Atom)