My day - I am improving :)

My day today has been a big improvement on yesterday.   I had a cuddle with Martha, and then a cuddle with Katy in my bed.  I woke at 7.30 am having had a few hours sleep once the birds had started singing.

I helped the girls get ready for the Beech Road festival.  They organised a stall to paint people's finger nails.  They were raising money for RSPCA and the park.  I don't think they painted anybody's nails in the end, but they really enjoyed getting ready for it.

My mum said that I was doing too much, and she was correct.  I went to bed and fell asleep.  I had an hour and a half, completely conked out.  I woke in time for the Murray - Djocovic  tennis final, and spent the afternoon watching the match. 

My arms and legs feel like jelly.  I cannot move around much at all.  I feel weak.  I can only move up and down the stairs with my mum lower than me on the stairs, because it remains a big challenge to negotiate the stairs.  I fear falling on the stairs - my legs don't work.    I tend to stay in one place for as long as possible. 

However, my headache is improving.  I took one codeine in the night, and have had no others today.  I have kept the pain back using paracetemol only.   What happens is, that as the paracetemol wear off, there is a growing dull pain inside the LHS of my head. 

The digging and the squeaky bed are both disappearing sounds.  These sounds are coming less and less often. 

The outcome of not taking the codeine is that my pooh is returning to normal consistency.  Hooray!!!
My drug regime is therefore changing.  I will only take Senna at night,  for a couple of days, and see how we go.  The steroids, paracetemol, omaprozole remain core.

So, after the tennis, it was back to bed.  Martha and Katy painted my toe nails, and Martha finished her literacy homework. Katy read Horrid Henry.  I drew a little picture of myself in Katy's link book - a smiley face with a short hair scar over the top.

Underneath of this it, I feel fantastic.  My mood continues to be bright.  I feel powerful and light. 

I expect to be on the phone soon ;)

Love you all

Sarah xxxxxx