Lost and found: Sarah's blog posts Saturday 29 June

Sarah has been posting to the blog from her Blackberry. The posts have uploaded as comments to the 'Thank you all' post of June 26. Here they are again.

29 June 2013 01:37

Good night to you all. I have been worrying about my scar and horrid hair. I have just had a chat with the nurse that looks aftr us, and I feel so relieved. He tells me that a scar like this must be left. No touching it until it is ready to be removed, which is usually around 6 days after op. In short - I must not do anything until tuesday onwards. Enjoy the horrid hair! It is stayin...m

29 June 2013 09:52

I had breakfast and had a shower. I cannot shower above neck, but have had a good wash from neck down. Shower gel was fab too - a lemon fragrance.
My bed has been made and I am going to have a sleep. Lots of love. Sarah x

29 June 2013 11:08

I have just had visit from Ms karabatsou (my surgeon). She came with 2 docs and a nurse. She says my scan "looks good" - this is the scan they took yesterday. She expects that I will need further treatment - meaning chemotherapy and radiotherapy. Thus won't be confirmed until all the tests have been completed (some time next week). She is happy I can walk to loo unaided, and that I have showered today.
I am not worried about the future treatment at all. I remain focused on having had op and being ecstatic that I can communicate properly. Let's wait and see what will happen next...
There will be a party at some point. M and k bought me a running mag, so I can start thinking about running again. My volcano trip - will be researched when I am convalescing at home.
Love you all
Sarah xxxxxxxx

29 June 2013 13:56

I have had a visit from occupational health. She was pretty and well spoken - good company. Her role is to help me be ready to go home. We are agreed that I am not ready yet! She has tested all my reactions eg put both arms above my head; push her hands away; pull my feet against her etc etc - loads of body tests. We have talked about who will be available to support me when I go home. I have answered honestly, in that I don't know but that I do know someone will be with me 24-7. The OT checked my vision too, which is hilarious because I had double vision and damaged vision before diagnosis, my vision and life improved the night that they filled me full of steroids (21/6/13). OT has left, content with my progress so far. Love. Sarah xxx

29 June 2013 17:27

Saturday 1725. Have just been visited by a neurosurgeon, to check my legs :). I had pain in one of my calves (left) this morning. We are made aware of possibililty of blood clots, and we are made to wear tight anti-clotting tights. I knew I had to tell the nurse.
The nurse checked it, and has referred me.
The surgeon has just done some physical tests, and measured both calves.
Everything is in good order :)

29 June 2013 17:46

I have an injection every day to prevent blood clots. My lef arm has two massive bruises from this. We moved to the right arm tonight :). S x