Apple store , Lyme Park and BBQ

Trip to Lyme Park
Lisa Watson and Iona take Martha and Katy to Lyme Park.  Martha makes Katy promise to let her play with Katy and Iona.  They both love Lyme Park - it is a giant natural park with a large stately home.  It could be compared with Lake District for spread of land, small lake, large trees, a fantastic stream, woods, and a magnificent playground that is designed for children with courage.  Both girls can climb to the top of a vertical tree trunk.  I never like to watch!  Here are some snaps that I have been sent.

Apple Store
I take Katy's IPOD touch to the Apple Store.  We have never got it working properly.  We arrive at opening time and there is already a big queue.  I have to wait from 10 am to 11.30 for an appointment, and I am not allowed to leave the store.  I start of thinking that I can't do it, but settle into treating it like a rest, and get my book out.
When I leave the store, she has working email, face time etc etc.  When we get home, I can't get it going again...  I have now decided to bin Katy's email account with Safe and Sound (I get to check her emails and approve/reject senders).  The IPOD touch doesn't seem to cope with the extra layer to the email process.  I set Katy up a Hotmail address.  We are NEARLY there.

BBQ
When they are brought home, I can't get up.  I am far too tired and had to stay in bed, so they went back to Lisa's for an hour or so.

I pick them up, and on the way home, we decide to have a BBQ.  It is still red hot in the garden - we got it going well and cooked hotdogs followed by toasted marshmallows.  I ate my tea, which Mum had prepared for me.

 

 

 

 

Good night everyone.

loads of love  Sarah xxx



Bank Holiday Sunday - no appointment on BH Monday

Early Morning Walk becomes blackberry picking with Katy

I have a terrible night's sleep with Katy in my bed.  She arrives not breathing well, and I end up listening to her most of the night.  As the night progresses, her breathing settles and she becomes well-sounding again.  We have begun to think that the sunflowers could be the cause of the sneezing, and red eyes and sneezing and asthma...  This could be a breakthrough for us!

Katy rises shortly after me and decides to come for a walk.  She has made more blackberry tarts today.

I am feeling well - we go to visit Joan (Dave's mum)

We check the motorways and decide that we can head over to Liverpool.  Joan is up for visitors.  I still end up sleeping most of the time that we are there, but we do have a very nice visit.  We have lunch, and we all go to the local park. 

Evening tidy up time

After tea, Martha and Katy ask to have "family time" and we all play charades.  We then go upstairs to tidy up their bedrooms.  Both of them apply themselves to the task. We make a pile of clothes for charity shop, a pile for ebay and hang new hand-me-downs.  I am able to give both of them praise, and we all end up feeling good.  Both are asleep now, and looking forward to day out at Lyme Park tomorrow, with Lisa and Iona.

My health
I have changed my anti-sickness drugs, onto a stronger one.  They are known to create constipation, so I am happy to not feel nauseous, but having to manage my diet to ensure I can have health bowel movements!  Today, we got it right - hooray!!!

Enjoy the bank holiday
lots of love
Sarah

England get silver in women's hockey

Women's hockey Euro Hockey Finals

I was surprised that we made it into the final, so to find we were 4-4 at full time was quite amazing.  I was able to see the whole game on TV too, which is so unusual.  Such a shame we couldn't convert this into a win, in the shoot out,  but a delight to get second place in the end.  Well done England!

 

End of the day

Here are Martha and Izzy J who have been practicing with make up.  They are currently choreographing a dance with Katy.  Katy had terrible asthma tonight.



 

 

 

Nigel and Sam, Natasha and Rebeca visit

 

I was planning to go and stay with Nigel (old uni friend) in June, but through Chris B sent a message saying that I didn't think I would make it.  A couple of weeks later, I am diagnosed and send him a note to let him know.  His reply was that "I could have found a better excuse!"  This still makes me laugh a lot.

 

It was great to see them all.  Natasha is moving into year 8 and Rebeca is moving into year 6.  All four girls get on really well. I barely talked at all with Natasha and Rebeca because they were playing so well with Martha and Katy.

 

 

Nigel, Sam and I caught up.  They brought me beautiful sunflowers, and some delicious looking chocolates.  Great to see you all.  Thanks so much for coming.

 

 

Our morning

 

Martha made a delicious tiramisu.  She calls it her "signature dish", which always makes me smile.  She is very skilled at making it from raw eggs. 

 

Katy filled her jam tart cases with blackberries mashed in jam.  The blackberry jam tarts were outstanding.

 

 

I then have an early sleep, to prepare for visit from Nigel and Sam.

 

 

Early morning walk

I leave the house with phone, steroid card and drink of water and no key.  I only realise this as I am walking out of my road, and it starts to drizzle.  I can't knock on the door because I would wake everyone (at 6.45 am), so I decide to carry on, and pretty quickly the rain stops.  The brook and the River Mersey are both raging, following the heavy rain last night.  There is rubbish passing, at a pace, down the Mersey - it has been scooping up wine bottles and a football, and various bits of wood.  I am first along the path, because I keep getting covered in spider webs.  I move down onto the path that runs directly along the river, to avoid the tickling.  I cover old run plus extension.

Have a good time
loads of love
Sarah xxxx

Morning walk becomes blackberry picking outing



 

I get up an hour late today, and when going for my walk, Katy asks to come with me.  She wants to collect blackberries.  Katy goes to get changed into long armed and long legged clothing, and I get some tubs and plastic gloves.  As we leave, Martha joins us too.  My time out is longer, and my walk is shorter, and we had a good time.  There are sooooo many heavily laden blackberry bushes.

 

Cooking
While out, Katy has made a deal with me.  She wants some time with me, on my own.  She is also very (seasonally) asthmatic and in need of motherly loving and care.  She wants to make blackberry tarts.  Following a favourite recipe of ours, which we cut out of a magazine, she makes some delicious looking pastry cases.  I am sous chef - I tidy up around her.

Martha makes giant Yorkshire puddings, from a fab Jamie Oliver recipe.  It uses 3 eggs, so they always rise well.  During this activity, I have to go for a sleep, so I miss the grand opening of the oven.  Here is Martha eating her Yorkshire pudding based dinner.

Off to radiotherapy
My appointment is reasonably on time.  I am so happy to have a three day weekend.  I don't go back until Tuesday, because of the bank holiday.  I have radiotherapy to ELO (ah ah telephone line ...).

A juice in "on the corner"
My local café bar sells what appear to be pressed juices.  We enjoy what we drink, but the juices are from a centrifugal spinner.  It was still very nice to have them served to me.

Martha and Katy are out with Dave buying school shoes
Let's wait and see what they bring home.

Martha and Katy go to Southport - some snaps

M and K stay with Nanna (last week)

 

The first picture is from the local Park in Liverpool.  Martha and Katy are playing basketball with a giant tennis ball, with Nanna.

Martha and Katy go on day trip to Southport, with Daddy and Nanna.

 

This picture makes me smile.  This is known as the Christmas pose.  We have a photo of Dave with the girls, in this pose, from every Christmas.  I can't believe he can still do it!  I don't think I can carry one of them like this, any more. 

Mucking up my drugs today; still a good day

Morning activity at something to six

I sort out all my drugs into my dispenser.  During this process I decide to put all the steroids in one jar.  Only then, I remember that they are different sized tablets.  Some are 2mg and some are 0.5mg; I can't tell them apart.  One type is bigger than the other, but I do not know if this is a 2mg or 0.5 mg.  I have to call the Christie hotline for help.  They advise me to wait until my appointment and check when I get to my suite 5.  Someone from suite 5 calls me and tells me to take 3 x 0.5 mg, and after a chat she understands that I don't know which tablet is which.  We agree that I should take one tablet, and then check at the pharmacy later.  It turns out that the biggest table is the 0.5 mg, so I am required to take two more with my lunch, later in the day.  All done.

I go out for my walk - my old run today, at a good pace.

Katy goes to cricket course
Martha is still sleeping.  I help Katy get ready for a course at Old Trafford.  She is going with her friend Rosy, and Rosy's mum is taking them to the course.  I drop her at their house at 9.15 am.  At the end of the course, she has really enjoyed it.  Katy and Rosy were the only girls - no surprises there!

Martha plays with Lauren
On my way to Christie's we drop Martha off at her girl guide friend's house.  She is feeling a little shy, but settles in quickly.

Radiotherapy appointment on time
I had a very quick appointment today.  Home in time for a good sleep.  I have been very tired because I did not sleep well last night.

Afternoon with Martha, Macmillan Nurse and Community nurse
Martha comes home at 2pm, tied for a three legged race.  She settles to watch TV for a while. 

I have a visit from a Macmillan Nurse, who was very friendly and supportive.  He will support me through whatever comes my way.  He has previously worked in a hospice so is skilled in supporting people who are managing the end of their lives.  He was also very positive, and we are both committed to my full recovery.  He has referred me for support from a benefits expert, so that we can find any funds that I can get help from. 

A community nurse arrives during the meeting, and we check in, and she quickly checks out.  No problems at all today.

Martha and I then go on a skate (Martha) and walk (me) to the doctor's surgery.  I have a letter giving doc permission to share my personal information with my mum's insurance company.  I hand in the form (this is for my mum) and collect a sick note.  The sick note is extended from 1 Sept to 30 Nov.  This is too long a time for me, so I return it and ask for it to be to 31 October.  I am hoping to return to work at half term.  Let's wait and see...

We then have plans to go to the park on our own, but bump into Katy.  In the end, we all go to the park and have our tea at a picnic bench. 

Good night everyone
loads of love
Sarah xxx

my drug regime

“6 Fields Brain” – radiotherapy and chemotherapy programme.

 

Revised programme, following appointment with consultant.  I am over half way :)

Date	Time of appointment	Omeprazole (stomach protector)	Anti-sickness	Last time to eat	Dexamethazone (steroid 1.5mg)	Time of anti-sickness tablet (Metoclopramide)	Time of chemotherapy tablet	Co---trimoxazole (antibiotic)	Allowed to eat
Mon	11 ish	When I get up	Before breakfast	Early breakfast	With breakfast	9ish / each meal	10ish	Take 2 x 480mg	12 ish
Tues	11 ish	When I get up	Before breakfast	Early breakfast	With breakfast	9ish/ each meal	10 ish		12 ish
Wed	2 ish	When I get up	Before breakfast	9 ish	With breakfast	12ish/each meal	1 ish	Take 2 x 480 mg	3 ish
Wed	Meet consultant
Thurs	11 ish	When I get up	Before breakfast	Early breakfast	With breakfast	9ish/each meal	10 ish		12 ish
Fri	11 ish	When I get up	Before breakfast	Early breakfast	With breakfast	9ish/each meal	10 ish	Take 2 x 480 mg	12 ish

Drugs

Chemotherapy –              Temozolomide                                  Take once a day before radiotherapy.

Antibiotic –                         Co-trimoxazole                                 2 x 480 mg every Mon Wed and Fri

Anti-sickness -                   Metoclopramide              Take one tablet up to three times a day.

Steroid -                               Dexamethasone              1 x 1.5mg  every day with food.

Stomach protector          Omeprazole                       Take before food at start of the day.

Anti-sickness -                                                            Take one tablet once a day.

Feeling better today ;)

My morning is good
I have breakfast today because I have an afternoon appointment.  I then go for my long walk, slowly, but complete the distance happily. 

I wash my hair
Eek, I did not want to do this.  I was worried it would hurt.  I have not washed my hair for so long that I can't remember when I last washed it.  It had to be washed.  I read my book for a little while, avoiding it.   In the end, I sink down into the bath waiting for my skin to scream at me, except it doesn't hurt at all.  I wash it gently.  Loads of hair is falling out that I scoop up and put on the side of the bath.  Not nice.  I have clean hair. :)

Keys cut and local shop sells masticated juices.
I have to get some keys cut - I lost a set when I was in hospital, and have only one set to share around.   Next door is Battery Park, who sell juices.  I discovered today that they also sell masticated juices.  I tried one with ginger in it, and it was delicious.  I plan to go back and copy down their recipes at some point.  It was also a real treat to have one that I didn't have to make.

Radiotherapy appointment followed by meeting with consultant
This was with my specialist nurse, Charlotte, and my consultant Dr McBain.  The outcome of the meeting was:

• stronger anti-sickness drugs to take one every day.  I can take the others on top of this, so I am very hopeful that I can fend off any nausea;
• reduced dose of steroids.  I reduce from 2mg per day to 1.5 mg per day for a week.  Then reduce to 1mg per day for a week.  Then reduce to 0.5 for a week.  Let's see how it goes.  More sleep for me, I hope.
• more anti-biotics (I was running out)
• I am allowed to eat before the morning appointment.  We think my sickness is a result of not eating from the night before, until after lunchtime.  My consultant gave me permission to have a small porridge before my morning appointment.  I think this will help me a lot.

My bald patch

Here it is.  My bald patch is growing every day. 

And finally
I have just had a night out.  Belinda Cashin, Julie Miskelly and Kay Statham - we have had a meal out at Yakisoba. I used to work with them as Partnership Development Manager, in Trafford.  We usually meet up two or three times a year, and have made it out tonight.   I have put make up on for the first time since my operation.  I enjoyed my pad thai noodle meal, with a bento box of delicious salad, fruit and miso soup.  An excellent evening, thanks girls.

Have a good day everyone
lots of love
Sarah xxx

Sick day today

Nausea and vomiting returns
I had a good morning and a very difficult afternoon.  I got sick after lunch, and ended up really struggling to control it.  Anti-sickness drugs weren't denting it, so in the end had to call Christie hotline for help.  They called community nurse to attend.  I was advised to take steroids and see if these helped settle stomach, which I followed.  It did in the end settle down.  The nurse was very friendly and was happy for me to wait to see if I needed the injection, and in the end I turned out to be fine.  I am very tired and about to go to sleep.

Occupational Health
I also had a visit from occupational therapist, who is helping me prepare for short term memory loss.  I have some homework to do.  She is also making sure that I know her, so that if I need more help as I progress through radiotherapy, then I will be comfortable with her.

Sarah McCall kindly came round and helped me a lot by chatting with me.  Louise came round later, too.  Thank you both :)

Martha and Katy come home tomorrow

I have a bald patch too - photo tomorrow

lots of love to everyone
Sarah xxxx

A good day

Blackberry tarts made with wheat flour

Martha and Katy, these are for you.  I have not eaten the missing one.  I had put it in a plastic tub, and then remembered to take the photo for you to see them.  They will be waiting for you, when you get home.

 

 

Long Walk
I did my long walk this morning - my old run and some more.  I felt tempted to jog some of it, but didn't.   My route is lined with blackberry bushes.  Martha and Katy want to go down to collect berries, so we will do this over the weekend, I hope.  The apple trees are heavy too, although the apples do not look ripe yet.  Here is a picture of the thistles.  I haven't really captured the beauty, but I have enjoyed seeing them.

 

Cancer Patient

I took my picture on the way to my appointment (on the tram).  It was intended to show you that I was wearing a scarf.  I think I look like a cancer patient!  My face is steroid-bloated.  Underneath the scarf my hair is coming out.

Trip to shoe shop
After my appointment, I come home for a sleep.  Then, I head out again to change my shoes.  I catch the tram and I am quickly at Clarks to buy some "unstructured" shoes.  I don't like them, but find a pair that I think look ok.  These dolly shoes will have orthotics fitted into them to stop me walking on a lump that has grown underneath my left baby toe joint (from a camping accident). 

The third man
I have a good rest.  I have a good chat with Martha, Katy and Nanna.  They have been shopping in Joan's favourite shop - TJHughes.  Martha has a large pillow, and Katy is very excited about having a lava lamp.  I have posted Joan a framed set of Andy Murray stamps, that will arrive tomorrow.  I think she will know what the parcel is, because she will have seen my BLOG about the stamps.

I finish watching The Third Man.  What a good film!  The lead is Orson Wells.

Have a good day tomorrow
loads of love
Sarah xxx

My hair is falling out

Yes, I have woken in the night and run my hand through my hair.  Loads of it is coming out.  I am not worried about having bald patches for a while - as you know, I have very thick hair.  It will be some time before I have bald patches.  However, it is time to start using a scarf or hat, I think.  It is time to look girly! 

love
Sarah xxx

Wheat free sugar free blackberry tarts

Wheat free sugar free blackberry tarts

Martha and Katy - this is what the tarts look like.  They look delicious, and taste delicious.  However, the pastry has not bound properly, and they fall apart and crumble up.  I will make you proper wheat based pastry tomorrow, so that you can eat a light and crunchy tart.  There are loads of blackberries left.



 

Louise in triathalon
Here is Louise taking a 90 degree bend in style, on the new bike.

 Louise is running very efficiently and overtaking people at this stage in the race.

 Finishers medal.  We missed Louise at the end and we were waiting for her to finish. Sue and I were worried about her time, as she was getting beyond her estimated finish time.  How pleased we were to discover that we had missed Louise finishing the race, and that she had a good time.  Fantastic!

Have a good day tomorrow
lots of love
Sarah Xxxx

The blackberries are ripening up

The Blackberries are ripening up

 

Here they are - delicious bulbous berries, that fall apart in your hands.  I did my long walk, and collected berries on the way.  I see the berries every day, and was amazed that someone had been collecting before me.  I picked above dog wee height and away from the nettles.  One sting only.  They will become blackberry tarts tomorrow (Martha and Katy's choice).

Celebration

I know I am turning into my Granny, but I want to celebrate Andy Murray's success at Wimbledon, so I have bought the Wimbledon set of stamps.  I also discovered in Herm, that there has been a recent set of covers with pictures of Herm on them.  Last night, I framed them both.





 

 

 

Dehydrator

I have looked at the dehydrator, but have not ordered it yet.  I will order it when I have talked to Helen.  I have ordered a cook book with recipes in it that I can use. 

 

Martha and Katy are at Dave's mum's

We have talked plenty on the phone, and they are both having a good time.  Today, they have been shopping in Liverpool.  Katy has a pair of new crocs, and is excited about this.  They went to see Uncle Paul at Mellow Mellow, had a good time, but left to eat at Subway.  They helped make a sign that said GF on it, which they thought meant Good Food; but no, it means Gluten Free - ideal for me!

 

Today

I had a sleep after my walk and blackberry hunt.  I then enjoyed pottering around my bedroom.  I have cleared and cleaned my desk, in tray and organised my stationery.  Bit by bit, my room is taking good shape.  My next job is to put my key papers into filing cabinet.

 

An old friend of mine from Trafford came round.  It was great to see her, and her son, Finlay, who is moving into year 1.  I know we will keep in touch.   Thanks for the lift, Hannah.

 

At Dave's house

I am going to watch Louise compete in her first triathalon, tomorrow morning.  Louise and I are staying at Dave's for the night, so that she can get an early start.  For me, it means that I can get out to watch her swim in the quays, by walking from Dave's.  

 

Have a great day everyone

lots of love

Sarah xxx





What radiotherapy is like

Today, my appointment time was changed.  I agreed to go in the afternoon to suite 7.  I am usually in suite 5.  I had the same radiotherapists, but in a different room.

The scanner looked exactly the same, as in suite 5. 

It is a big circular shape that stands behind a long thin table.  The table is separate from it, and the big circle rises up from the floor.  The circle is solid.  It looks like something out of Doctor Who.  The radiotherapists are the evil creatures who sneak out of the room to zap me while I am not looking. 

The scanner is large and has circular glass panels.  It is nearly ceiling high.  It is a big circle standing one the floor.

There is also a smaller scanner.  At the beginning of radio therapy, it is a circle about 2 feet wide that lies above my head.  I am lying on the table, and my head is screwed to a polyurathane neck mould.  It is an artificial yellow mould that I put my head into at the start of the process.  The radiotherapists than add my "shield" (the mask) and screw it around the mould.  The mould keeps my eyes closed, but I can peak and see the circular scanner above me. 

The radiotherapists then begin measuring everything. 
"93.2"
"Good, move 1.3"
I get shunted.
"94.5"
"Good"

They measure a few different places, and then leave the room.

In suite 5 there is a CD player, so I play by ipod.  We were in the middle of Jazz (Queen), Fat Bottom Girls, I think.  However, in suite 7 there is no CD player.  This means that I listen to the scanner.

What I can see through my eye lids is blue flashing light.  The small scanner has moved - it is to my left hand side.  The radiotherapists have left the room.  The scanner sounds like a spirograph.  Imagine someone is drawing a circular pattern, with a blue lazer pen, using the plastic circle and outer shape.  The sound of someone doing this really fast.  This is the sound of the scanner.  The pattern is what I imagine is being projected into my brain.  The aim is to stop the tumour from growing. 

The scanner stops, and then it starts again, from another angle.  I think a different sized circle is being used, and the pen goes round really fast, and all the teeth grind to make a high pitched sound.

Three different scans occur like this.  Then the radiotherapists return, and I am rotated 90 degrees or so, and re-measured for other scans.  More scans continue.  If there really was a pen, there are at least two spaces on my scalp that would be painted blue. 

These are the parts of my skull that are really sore.  It does feel like a burn, and I think I am at the early stages of hair loss - just the odd few hairs are dropping out here and there.

And then a radiotherapist appears and says "all done" and unclips my mask. 

I always say thank you, which they find funny.  I can't imagine what their job is like, scanning people like me all day.  It must be hard going.

We all wish each other a good weekend.

Katy makes a juice

Good morning

It is starting to get lighter much later now.  Dawn is around 5.45 am.  I don't hear the birds singing, like I did in early August.  I am unsure if that is that they don't sing, or if it is because I have my windows closed.  Katy's asthma is kicking off, which means that Autumn is starting - her asthma is always at its worst as summer changes into the next season.  It then settles down into a mild irritant as winter progresses.

 

Busy morning

Every day, I have arranged for Martha and Katy to play with a friend, while I go to the hospital.  Yesterday, Mum driving, we pick up Martha at 9am from her friend Sasha's (after a sleepover), and take both girls to Charlie's to play, so that I can get to a 10.30 appointment at Christie's. 

 

Before we go, I make Katy pancakes, as part of her sleepover with me.  I give her one in bed, which she really enjoys.  I don't make it out for my walk - there is not enough time this morning. 

 

So, the girls are playing at Charlie's.  I go to the hospital.  I have not eaten anything - I have only drunk water.  I have my pills in my bag, so that I get my drugs correct. 

 

Today, I plan to put all my drugs in a dispenser to see if this helps me to keep on top of them.  I have also programmed my phone to give me reminders.

 

My appointment is late

When at Christies, we are told that the scanner is 30 minutes behind schedule.  I have to wait, and it turns out that I am sent in before the person with the 10.10 appointment. 

 

Poorly afternoon

Returning from Christies, I feel really nauseous again.  I take the anti-sickness pills and wait for them to work.  At home, I make and eat lunch, hoping this will push away the nausea, but I still feel sick.  I lie down and hope it passes, and basically doze for a couple of hours.  My mum goes to collect the girls from Charlie's.  My mum is waiting to head home to Bristol for the weekend.

 

Martha melts down

Martha and Katy are going to stay with Dave's mum, today until Wednesday.  Martha does not want to go, because she wants to stay here with me.  I know that when she gets there, she will have a good time.  However, Martha is very upset and crying that she doesn't want to go.  Why should she go?  Why can't she stay here with me?  I don't want her to go, either, but have to be firm that this is the best of our ideas, and we talk about using the phone to talk.

 

If I could drive, I could visit them.  I can get the train over there, but I would not risk moving away from my support team over here.  The district nurse visited today, and I can see how I need their support as I move through the treatment programme.

 

Sasha drops by

While  Martha is upset, her friend Sasha comes over with her bike and pj bottoms.  Martha will not get up to see her, and I tell Sasha, and Anna and Jon, that Martha is very upset about going away.  They understand very well.  Sasha returns a little later with a dark chocolate macaroon, as a gift for Martha.  It is so thoughtful.  Martha accepts the visit and the gift, and enjoys the macaroon.  She loves dark chocolate.  Thank you Sasha.

 

Katy makes a smoothy

I am starting to function much better.  I had made the girl's a lasagne.  My mum had polished of three portions, and Martha and Katy ate all of the rest.  Eaten with sugar snap peas, I am happy that they are both eating well. 

 

Katy makes her first juice.

 

Katy making a carrot and apple juice.  She is really enjoying using the juicer.

 

Love Film
I signed up for a free trial with love film, mainly so that Martha can pick up instant films on her Kindle Fire HD.  I have got it working through my lap top, but failed to get it to work through the kindle.  Over the last few days, I have spent a long time on help lines to Love Film and Amazon, trying to sort this out.  We have cancelled accounts, discovered that Dave's visa card is logged in to Martha's account, I have changed the name of my account to Martha, so I am answering all calls in her name etc etc.  I still haven't got it going, and am very frustrated, because Martha would have used this service at Joan's.  The good news is that my free trial is now two months long, but if I don't get it working, then it is no trial at all... 

At the end of the day, I am feeling much better.  Martha and Katy are packed for their trip away and watching The Smurfs on love film (on lap top) in my bed.  Katy has the pleasure of sleeping in her own bed tonight, because Grandma has gone home.  Martha wants to come and sleep with me, so when I settle down (after a call with Amazon that does not yield Love Film on the Kindle), I go and get her to come and join me in my bed.

My appointment time has been changed
Today, my morning appointment has been moved to the afternoon.  This is good, because it means that I can have breakfast.  I am hoping that I will not suffer from nausea in the same way, after my appointment.  Let's wait and see...  Last time to eat before 1330 appointment will be 0930.  My morning will look like this:  porage and cup of tea, drink water, get girls out of bed and dressed, give girls breakfast, be ready for Dave to collect at 8am, go for a walk, have second breakfast, set up replacement amazon account (for me); order dehydrator, sort out pills in dispenser tray, get ready to go for appointment on the tram ...  I will need a sleep late morning, too.

Love you all
Have a good day
Sarah xxx