Thank you all for your support. I have just been talking with my sister, Bev and trying to explain what this is like for me. It is simple - I want Shirley removed. Get her out!
Some people are very worried for me. The overwhelming feeling that I have is love. I have people around me that love me. I feel love. You are all there for me. The next stage is going to be very difficult, but I do not feel any personal fear. I may not be happy at times, but I will know that you are there and helping me through it. Not long until the real Sarah C is back. Down with Shirley.
Thank you for all the messages, gifts and support. Really sorry that I can't reply to everyone, don't stop sending the messages because everyone helps me.
Love especially to Martha and Katy. Please keep supporting Dave, Martha and Katy. They love you too.
Party when I am Shirleyless...
We wait for the op appointment. I go in 3rd, straight after lunch. Hope the doctors don't have a macdonalds.
ReplyDeleteI have seen a string of different doctors. The top op doc, the anaesthetist, an event planner (sadly not a party planner); I missed the nurse but Dave was able to answer drug questions.
I have an arrow on the side of my head - gotta make sure they go in the right way :).
I know the op should take about 2 hours. I have been reminded of the risks, and again, I feeling simply positive - let's get Shirley out.
I am being supported by my mum, brother, sister. Dave is trying to coordinate them and bamboozle them with liverpudlian jokes.
ReplyDeleteBest one: my mum asked if he was looking forward to taking M and K to Herm (camping holiday). He laughed and said "I am looking forward to it like a hole in the head".
I have just ben texted by Emily. She spok witha good friend of hers yesterday, who works closely with the Neuro team at our Hospital, and she says it is the best Neuro team in the Country!! You are in go hands.
ReplyDeleteSee you after the OP., Sarah.
We love you!
Chris
xx
Blimey, let's try that again - that reads like I've got asphasia!!
ReplyDeleteI have just been texted by Emily. She spoke with a good friend of hers yesterday, who works closely with the Neuro team at your Hospital, and she says it is the best Neuro team in the Country!! You are in good hands.
See you after the OP., Sarah.
We love you!
Chris
xx
Great news. All good so far. Can't wait to get going. Get Shirley out out out ...
DeleteHi again, I have seen another nurse. I have my tag on my arm that give name and date of birth. I am the correct Sarah C - not my duplicate!
ReplyDeleteI have had my pulse taken. It was 61 - not bad, I thought.
Blood pressure was ok too.
They tried to take blood samples. I have been stabbed with a needle several times, and the nurse had to give up. My blood sample will be taken when I go in for anaesthetic.
We have filled in loads of forms: I don't have allergies, illness, don't smoke, don't drink, ate at 1145 pm last night, drank at 930 this morning etc etc. It is all done.
I am waiting to be told when to go and get my gown on.
I have snuck outside to the garden. Beautiful garden. I have sat on a bench and talked through a set of pocket photos that we have made for M and K to use, if they need to be with us. They will each have a photo of me, dave and eachother.
ReplyDeleteI have talked through each photo and told them what the photo represents to me.
I know they will like it. I know they might laugh too.
A favourite is one of us at sport relief run. I remember talking to dave and saying that I was getting slower, so he should run with fastest daughter. Maybe we know why??? Or maybe we don't. WhAt am I going to blame for being thick, when I am functioning properly??
A funny chuckle for you. I canceled my life insurance in October 2012! I have saved £6 a week, but if I don't make it Dave has lost £49, 000.
ReplyDeleteI have left him the letter in my finance file ...
Ps I do expect to make it in good shape.
I have just seen ms karabatsou, who is surgeon. She looks smart and ready.
ReplyDeleteI was having a doze. My brother is snoring right now!!!
I am told I will go for op within an hour.
Also, my friend Helen is popping in and it looks like I will see her before op, which is a bonus. S xxxxxxxxx
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DeleteAnd a big 'X'from me!
DeleteSending our best. Hope your got the card Olivia made for you.
ReplyDeleteSee you soon x
Good moRning all. I can undersand you talking and I can talk bac'. Probs with words and memory within this, but basically on form. I could not ask for more.
ReplyDeleteMy LHS is swollen duing night. Doc will ome to look t it. I think it is expected part of process.
So all is in order :). :)
Arah xxxxxx
Sarah can receive BLOGs emails texts facebook etc. She cannot read them all nor reply, but appreciates any that she sees. Keep up the messaging - it really helps.
ReplyDeleteThis is Sarah and my progress today.
ReplyDeleteThroughout the day I have had bloodpressure tests. Pulse rate and temerature - al taken a number of times and recorded in a yellow A4 file.
I was taken for an MRI scan at 830. A porter came to push me in a chair to the unit. The unit seemed to be on opposite side of hospital. Another man came with us in wheelchair - he had a big tape up the bck of his head and told me that they had removed "an egg".
At the unit, I went in first. Same as previous scanner. Instructions were to lie still and don't move. These make me laugh because I am not able to move about !!!
The scanner is very noisy. I have ear plugs. They are several phases. The end phases are with die, so that they can see everyhing.
Drugs; my drug regime is being amended. The steroids have been cut for four every morning and four every night TO three. I have a tablet added to protect me against the effect of the steroids - they would damage my gut. Added - paracetemol; added - two tablets to help me pooh! Nothing going on down there yet. Love S x
ReplyDeleteAfter the MRI scan, I was pushed out into the corridor, to wait for a porter to take me back to my ward H7. I was seated in a corner waiting room. Two people arrived, a man and woman. I waited.
ReplyDeleteI waited. I asked the man to get me a drink of water. Staff had to check this was ok, and a glass was brought to me. I waited. I asked the man to tell reception that I was waiting. I waited.
The other young man emerged threugh the doors, with a porter, and was taken back to the ward. I argued with the porter, asking him to take me first, but he was following computer instructions.
A radiographer appeared through the door. I asked him to take me back. I didn't care how I got back - just take me back.
He refused (on the grounds of being a radiographer),
Eventually, a porter appeared. I was returned to H7 having missed breakfast, missed bed baths, missed ordering my lunch (tricky cos I am veggie). When I got back I was very distressed, as you could imagine.
All solved with a talk, an air fan and a "sleep in a breeze".
Not a good morning today!
Good night to you all. I have been worrying about my scar and horrid hair. I have just had a chat with the nurse that looks aftr us, and I feel so relieved. He tells me that a scar like this must be left. No touching it until it is ready to be removed, which is usually around 6 days after op. In short - I must not do anything until tuesday onwards. Enjoy the horrid hair! It is stayin...m
ReplyDeleteI had breakfast and had a shower. I cannot shower above neck, but have had a good wash from neck down. Shower gel was fab too - a lemon fragrance.
ReplyDeleteMy bed has been made and I am going to have a sleep. Lots of love. Sarah x
I have just had visit from Ms karabatsou (my surgeon). She came with 2 docs and a nurse. She says my scan "looks good" - this is the scan they took yesterday. She expects that I will need further treatment - meaning chemotherapy and radiotherapy. Thus won't be confirmed until all the tests have been completed (some time next week). She is happy I can walk to loo unaided, and that I have showered today.
ReplyDeleteI am not worried about the future treatment at all. I remain focused on having had op and being ecstatic that I can communicate properly. Let's wait and see what will happen next...
There will be a party at some point. M and k bought me a running mag, so I can start thinking about running again. My volcano trip - will be researched when I am convalescing at home.
Love you all
Sarah xxxxxxxx
I have had a visit from occupational health. She was pretty and well spoken - good company. Her role is to help me be ready to go home. We are agreed that I am not ready yet! She has tested all my reactions eg put both arms above my head; push her hands away; pull my feet against her etc etc - loads of body tests. We have talked about who will be available to support me when I go home. I have answered honestly, in that I don't know but that I do know someone will be with me 24-7. The OT checked my vision too, which is hilarious because I had double vision and damaged vision before diagnosis, my vision and life improved the night that they filled me full of steroids (21/6/13). OT has left, content with my progress so far. Love. Sarah xxx
ReplyDeleteSaturday 1725. Have just been visited by a neurosurgeon, to check my legs :). I had pain in one of my calves (left) this morning. We are made aware of possibililty of blood clots, and we are made to wear tight anti-clotting tights. I knew I had to tell the nurse.
ReplyDeleteThe nurse checked it, and has referred me.
The surgeon has just done some physical tests, and measured both calves.
Everything is in good order :)
Love you all
I have an injection every day to prevent blood clots. My lef arm has two massive bruises from this. We moved to the right arm tonight :). S x
ReplyDeleteDrug regime:
ReplyDeleteMy steroids have been reduced to 4mg in morning and 4mg at night. I took 2 steroid tablets, 2 paracetemol, 2 codein and 2 tablets to help me pooh. I have not been able to pooh!
Before op I took 8mg steroids in morning and 8mg at night. Everyday I take one other pill in the morning to protect gut from steroids. S xx
Coming out of anaesthetic, my mum tells me that my answer to the questions was helen.
ReplyDeleteWho is the queen?
What is the name of the prime minister?
What day is it?
What year is it?
What hospital are you in?
What did you come in for?
This is true! I can remember doc karabatsou asking me questions. I can also remember my fantasy - helen was at the hospital with her dad. He was in the next room under a general anaesthetic. Whatever the doc asked me, my answer, Helen, was guiding her to take Helen t he Dad
I was interupted by the ward sister, to take my pulse, blood pressure, ask me all the questions written above ...
ReplyDeleteI have had a gOod day today. Max came to visit me, from bristol and she shared the tennis progress with me. I so want to be watching andy beat djovic in the final. What a good year that would be :). Max was not blubby either. She kept bursting into tears whe I last saw her - I had diagnosis and was getting ready for op. I cried only once - when katu gave me a get wellcard.
Bev and mum and no doubt max have all been looking after martha and katy. They showed me videos on katy's ipod touch. My favourite by miles was a vidoe of them doing a cup song to a song they had composed for me. I am hoping bev may be able to upload it to BLOG forall to see.
More to ome - having a hot choc .
Bev was astounded by how well I am looking. We think I may be through the worst of the swelling, but let's wait and see. She brought me some meringues - these are my no 1 cake. The french meringues are the best, but the M and S version are top quality too :)
ReplyDeleteLouise dropped in for A quick visit too, which was spot on because I was very tired. I loved seeing her. And know that as we go along, louise will undestand the subtleties of my experience. Eg I gave up my job because I couldn't cope. Hmmmmm. I had a brain tumour. All different to me now...
Off to bed and a good sleep. Lve you all. Keep sending messages - they are all warming me. Sarah xxx
It is the middle of the night and I have given up on sleep for a while. I share the ward with two women. Victoria has had an op yesterday, something to do with collpsed veins and shakeyness - when she walks she shakes her arms, her legs, her head. She has her antibiotics through a drip. The drip is set up to bleep at various stages. It is bleeping now. Bleeep. Bleeeeep. Bleeeeep ...
ReplyDeleteVictoria is actually the quiet one! Directly across from my bed is Jo. She is a stroke victim, who is close to my age. She has a stunning husand(a builder) and three beautiful children aged 6 10 and 12 I think. (Hooray victoria's bleepig has stopped). Jo has had a tracheotomy - she breathes through a tube into her throat. She is fed using liquids directly into her stomach. All day se has been "nill by mouth" because she was due to have an operation today. At about 5 pm the sister discovered it had been cancelled (and she had not been informed). Since then the sister has been trying to feed Jo. The sisters change over at 6 pm, so this continues with new sister ... They are still at it. I do no know if they will go beyond 2am. I guess they will stop there for jo to be ready for op tomorrow. I don't know. But the bleeping continues. I am so sorry that jo has to go through it ...
The communicating bit of your brain seems to be working very well - not sure about the sleeping bit - is it the drugs!!
ReplyDelete[Great that you can share 'this journey of recovery' with us though. Isn't technology ace!]
Woke up on Sunday 30th in pain. Ward sister realised that I have had no pain relief since 10pm. I have taken it and it is starting to bring me back ...
ReplyDeleteNot a nice experience, but it is ending.
Pain has been reduced thankfully :).
ReplyDeleteI have been taken to a kitchen to "practice" by an occupational therapist. I made a cuppa tea and a buttered piece of toast. We have chatted about my house and help I will require.
They are going to give me a chair for upstairs and a chair for downstairs. These will be used for me to rest at the correct height. OT (oCc therapist) has taken Dave's number, to organise delivery.
A new waLl bar will be put up and down my staircase. It is not safe for me right now - too steep. What I will have is stair rail on one side and new rail on the other.
With these in place we expect that I will be able to move around the house. Again, OT is going to plan this with Dave.
Initially, I guess that I will be upstairs in bed and using bathroom.
My tea and toast making skills were good. I am, of course, very slow and very tired. However, I can plug keTtle to wall; press on off button, put water in it, find a cup, tea bag, fill cup, find milk, pour milk, tea bag into bin, drink. Sounds easy I know, but it did take me a long time ...
We are both very happy with my progress.
Love you
Sarah xxxx0000xxxxx
Sarah, you are setting a world record for rehab! but what else would we expect? You truly are one of a kind. Xxx
ReplyDeleteHello all :) :) :)
ReplyDeleteI have just had a visit from Martha and katy, and dave, Bev and Gee.
Martha and katy gave me a giant card with 7 pictures of the four of us stuck onto it. Inside katy had made a stripey banner and written across it "happy hospital". Martha decorated her side with little messages on post it notes. You're amazing, happy hospital to you, I want you back ... On the back of the card it says "love from martha and katy". It is a beautiful gift. Thank you girls xxx
Both girls were truly amazing. They understood that they could not touch my head, but I did catch katy having a close look at my scar. It looks like a big hair braid, all the way over the top of my brow.
ReplyDeleteKaty wanted a cuddle (a huggle) and had a cry. Katy, I love you so much - you are so special to me. Both sat close with me and joined in chatter.
When left alone, they showed me their new gizmos. Katy has an ipod touch, and martha has a kindle fire HD. We played a logo game - can you recognise the logo??
I think they were in good spirits when they left, but if not, I know that they are with family who will support them. Remember that I love you. I love you. I love you. I love you. I love you. S xxxxx
Dave looked good, and Gee was on form. He gave me a head scarf and a bracelet. I will use both when home, but for now I have to spend my day in jimmy jams and sport an ugly hair do ... No touching my head or scar at all.
ReplyDeleteCan't think of a better excuse for a bad hair month! Lot's of love to Dave too. Hope they saved you some cakes! Xxx
DeleteBev and my mum have visited tonight. Bev goes back to Jersey tomorrow. She came over before op and has supported family through the experience. I haven't been with her but he stories have been joyful. Hoping she can come over in a couyple of weekends for a John weekend too (my dad). Tonight she has organised all my stocks too. I love you Bev.
ReplyDeleteMum has been tremendous too. She has been home to Bristol and returned to help us all. Again, I am not at home but I do know that mum is in top form. I love you Mum.
Good night to you all. I love everyone. You are the most amazing set of friends. Big smiles. Sarah xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
I have not had a pooh since before operation, I am not worried about this yet ....
ReplyDeleteComing soon: wimbledon second week; tour de france; the Ashes, Glastonbury. There is rugby too but I haven't got touched by this yet.
ReplyDeleteLoads to watch on TV when I get home. I have no idea when I will go home. I am not worried - I will just "go with the flow". Who knows, I may miss Wimbledon ...
Come on Andy! Come on Laura!
Love you
Sarah xxx
This is your time Sarah. The past months have been such a living nightmare, now at last you have the reason. Time to recharge your batteries. One step at a time.Tea & toast today, maybe even a pooh tomorrow! Love you. Xxx
ReplyDeleteHooray! I have had my 2 an pain relief tonight :) :) :)
ReplyDeleteOur new member of the ward is Nelly. I have no idea what her op has been. She is 75 + and has senility. Very confused, loud and uncertain. Currently she is very upset because she can't find her cup of tea (which is in front of her), she hasn't had her tablets (she has), her son isn't answering the phone ... Her daughter has talked to her and I think a family memeber is coming in to help her. She wants to go home. A nurse is helping her to understand. It is very sad.
ReplyDeleteI am resting after blood tests. I phlobotoomist (?) Came and asked for blood. I hate needles, and have developed a technique where I cannot look. I have told her this. She has tied a tight rubber around my arm and found a vein. Believe me, that after that, I did not feel a thing. She says, "that's it". She has labelled all the tubes of blood.
ReplyDeleteOff to Nelly next ...
Lizzie, I hope you find this. I have never been to Glastonbury, but it is going onto my list of things to do. I can't watch it right now, but next year - I hope to be there.
DeleteMy hair is a disgusting mess. It is glooped with some mass that sticks it away from my face. All the fronds are gelled together.
My problem has been that the stickiness is breaking down, so my hair has started to trickle over my face.
I asked for hair slides. Hmmm that brought a laugh. We ended up with tape.
Looks awful, doesn't it?
As you know, I don't care at all. I remain delighted that shelly has been (mostly) removed.
My mental capacities have changed immediately. There are many interests that I had, and lost, that have returned to me. Couple this with the ongoing diagnosis that I was depressed and it will be easy for you to understand my total glee. I am not depressed. I had a brain tumour. Brain tumour affected operation of my brain. Tumour gone. Brain working well.
Love you.
Sarah xxx
Nelly only wants to see the "man and wife". Who looked after her last night; "the indians". I am howling.
ReplyDeleteHad visit from registrar who was in recovery room with me at end of operation. I believe she is senior to doc karabatsou. She has seen my MRI scan, and she and doc K are delighted with the outcome of operatioin so far. They have removed most of the tumour.
ReplyDeleteHer discussion with me was about going home. Do I feel ready to go home? I said I feel weak and that I should stay here longer. She said that I will continue to feel weak and that she believes recovery at home would be the next move. Her next steps are to check that the banister would be put in on my stairs. I am afraid of slipping on steep victorian stairs. She laughed at my suggestion that I could go home and live upstairs until it was put in properly.
Registrar is going now to look at drug regime too. A full departure plan will be prepared, and this will be discussed with Dave and my mum. My steroids will be cut again to 2mg in the morning and 2mg at night.
I am content to follow hospital guidance, so who knows, I may be back in Chorlton tomorrow. Watch this space :)
For future treatment, my next appt with doc karabatsou is likely to be Wednesday. This is where we will look at the results and plan what happens next ...
I have started to pooh! Hooray...
ReplyDeletePain killers - I have just taken two paracetemol and no codeine. Trying to help my bowels get going properly. I have agreed with nurse that I may have to continue codeine, but her goes... Wish me luck.
ReplyDeleteHi there. I have had visit from physio, who lives near the four banks in Chorlton. We have walked along the corridor together, to the stairs. My stairs have a bannister on RHS, so I have been advised to move up the stairs, one stair at a time. Put right foot on stair and lift up left foot. Repeat. I am holding my bannister at the same time. I can do it confidentally. T the top, we returned in the same fashion.
ReplyDeleteThe Occ Therapists will put in a bannister along the wall too, so I go home sure of my skills in moving up and down stairs.
The steepness of the stairs remains but I am content that I am competent.
Physio also asked me about support at home. I have shared with her that my mum, and dave, will make sure that I take things in small paces. Physio is referring me for further support. To help me develop back into my full self again ...I will have a physio who will viit me at home through my recovery.
Love you all
Sarah xxxxx
My vicar, Ken has just visited. He is a part of my life that had ebbed away. Pre-tumour I was involved in the church and enjoyed the sense of fulfillment. With tumour, this has been erased. The joy is understanding this. I had a brain tumour.
ReplyDeleteHe is a warm and caring man. He opened the church on the day of operation for people to pray. He has prayed with me and for me and set up prayers for me. Thank you for your support.
That is great. Look forward to meeting him at some point. Well done for passing the stair test. Really good to hear about all the careful care & planning for your return home. So glad you have Dave & mum. Wednesdays seem to be the key day, more love Xxx
ReplyDeleteMy mum came in too. She is very relaxed and easy company. She decided it would be a good idea to go to cafe for a coffee, and have a little "break". We had a good chat with Ken. Mum clarified that it would be ok for me to go out for a trip. So, in my mum's wheelchair (which I hate) I am pushed to the cafe. I chose a space where I faced out of the windows, and felt like I was outside for a while. I did not have a coffee. I had a bottle of water, but the mental release was stimulating. In fact, I didn't have a bottle of water - I had a few sips and then asked to return to ward. Ken and mum managed my movement. We bought a paper, OK mag and Hello Mag on our way back. A lovely outing, thanks.
ReplyDeleteI was of course v tired and dropped off, I think. Love you all.
Drug regime:
ReplyDelete2mg of steroids at night,
2 tablets to help me pooh,
2 parecetemol
2 codeine - back on the codeine overnight (which I do need)
Margi, yes, I can wee and I do look good :). Thanks loads. Pjs are perfect. S xxx
ReplyDeleteMartha visited me tonight, with Dave. She cuddled up with me on my bed - lying on top of me and hugging my legs. I moved her up and we cuddled eachother properly. She is very comtained. We talked about her secondary school choices and the open day at stretford grammar school tomorrow. Lots of her friends want to go to Chorlton High or stretford grammar or Sale Grammar. Her choice is CHS but she wants to look at Grammar schools too. I won't write what I think she will do..
ReplyDeleteDave poetically moaned about all the forms he had to fill in, the money he had to pay, the calls he had to receive, or make. I will be back in action at some point, Dave, I promise :) :)
Martha an I shared a piece of cheesecake that had marshmallow on the top (martha's). I sent a piece home for Katy. I got covered in bits of chocolate. All over my front, breasts and bed ...
I can't really expand any further. We had a relaxing time together sharing Martha's thoughts and plans. Very pleasant, thank you. Xxxxx
Lights down 1130 pm. All Quiet. I do not feel well. High temp. Nurse knows. S xxx
ReplyDeleteGood morning all. Had a bad night last night, but happy to say I am through it. Had a fever and ended up needing help going to loo in the night. Missed my pain killers, so wake in morning in pain... All going now. Going to try to sleep. S xx
ReplyDeleteGood morrning all. Pain killers are working. Nelly is in bed opposite ne, shirley remains name of my tumour, and I am shirleyless :). Love you all
ReplyDeleteThanks for messages
They help me so much
Sarah xxx.
So sorry for your pain. You are being so brave. huge hug. Xxx
ReplyDeleteDave, I think you have just put a message on the BLOG - "when have I ever moaned?". Write your name too because it comes to me as "anonymous".
ReplyDeleteI have just been filled with loads of drugs - the list is given somewhere. We are down to 2mg steroids.
Love you
Sarah xxx
It is Nelly's birthday today. She is 85. She has a birthday card from her daughter and is very proud. She is bonkers too ...
ReplyDeleteI think I will be bonkers long before 85!!! Happy Birthday Nelly. Xxx
ReplyDeleteI have slept through the morning on painkillers, and then more pain killers ... Actually, I have had same pain killers as any day but today I have been needy.
ReplyDeleteMy joy is that it is lunchtime, and I missed the lunch order. No idea what lunch will be ...
I had a bigger pooh :)
ReplyDeleteI have dozed throug the day. I am weeping now because I have listened to West Side Story. I love the music and the dance, the power of the story. It is something that I had lost. The connection between music and my soul. West side story makes me cry. My connections are coming back. I do not know how to describe it to you, except to say that I am so happy to be in floods of tears. Love you all. Sarah xxx
ReplyDeleteKaty has spent the evening session with me. Katy, I love you so much. She has calmly asked me lots of questions, like what did they take out of my head, to, who is the illest person in the ward. However she decends into tears and cuddles. I have told her how much I love her
ReplyDeleteAnd how special it is that she is sharing how she feels. Having a mummy with shirley is NOT GOOD. But hay, let's keep celebrating. Shirley has been removed and I am on recovery. I am re-experiencing new sensations (eg I feel pretty and witty and gay :)). Katy, keep crying - you are beautiful - and keep smiling - your mummy is back. We are going to have the most ammazing times together.
I am having sutures removed later this evening. I am nervous about this :(
ReplyDeleteLove to all of you
Remember that I cannot see my BLOG. I can only add my experiences. Can't wait to see it when I get home... Sarah xxx
Still scared about suture removal. Hello NCT girls :). I can remember having caesarian sutures removed and the whole procress being agony. The big tip was to relax, but I was uptight, so IT HURT. Gotta be relaxed and chilled, I know . Love you all. Hope to text soon that it was EASY. Love you all.
ReplyDeleteThe sutures have been removed. I have been calm and allowed nurse to work across my head. For each stitch she has found the thread and cut it, and then removed it. I was given a little blue dish to hold stitches in. The tricky ones were under a mound of blood. For these, the nurse had to gently remove the blood, find stitch and then remove it. There were lots with knots on too. They have been removed. Hooray. Snaps will follow.
ReplyDeleteA number of them were painful, but I have to say that the nurse respected how I was feeling and we got there together. Thank you Rochelle. Good job done. :)))). Love you.
Love you all.
Alec Bielecki - good morning. Great to hear from you, I am so happy that you are keeping in touch - every message warms me.
ReplyDeleteI have not heard from Geoff at all. Could you check that he knows.
Thanks. Love you
Sarah xxxx
Blimey - that was tricky. I lost my input page.
ReplyDeleteRegistrar has met with me. They are ready for me to go home. I have talked again about the safety of my stairs, and we are all agreed that I cannot go home until a stair rail has been hung on my wall. My stairs are too steep and I expect to be able to hold on. At the top of my stairs there are two or three steps where I cannot hold current rail.
So registrar team have left to sort out the rail. When the rail is there, I will go happily.
My specialist nurse has visited me too. I recognised her but could not place her. Alison Hope, I think. She is delighted with my progress and again, focused on getting the stair rail fitted.
Other matters. I have been able enough to activate the TV. My plan is to watch Andy Murray play this afternoon. Come on Andy! I don't know how much I will see, but definitely something :) :). My big goal is to watch Andy win the final.love you. Sarah xxxxxx
Come on Andy!
ReplyDeleteI have the match on and plan to see as much of it as I can.
I will be heading home tomorrow. Gonna sort it all out later when Dave comes in for visit with M and K.
Obs I am tired and exhausted and getting over a major operation, AND I am exhuberant and full of beans. See you all at home :). Love you all
Wonderful! Just to make you laugh, have just spent an hour chasing Timmy (one of my rabbits) round the neighbourhood. Now know all the neighbours that I didn't. Glad to report Timmy now safely back with Phoebe. Luke very supportive but hugely embarrassed by mad mother! Can't wait to hear about visit with M & K. love to you all. Xxx
ReplyDeleteDave, Martha and katy visited tonight. We watched the tennis:). I declined taking codeine to have an awake visit, and it has worked well so far. Pain is starting to grow, but the freedom to chat with girls was fantastic. So. Andy won the tennis. Yahooo!
ReplyDeleteKaty shared with me stories of her acting today, and martha likes Chorlton High more then Stretford Grammar. She has to visit Sale Grammar too. The big plus for stretford grammar is the size - it is only four form entry. CHS is 300 entry. It is joyful hearing her talk about it - she is so grown up already.
The three of us went to the loo together. Katy took pictures of my scar and they were both interested in looking at it without stitches. The blood! They did not like the blood that remains. Tomorrow, I cam wash my hair. I can't wait ...
Btoh girls had a good cuddle with me. All of the visit was happy and fun. A delight.
So, we get ready for me to head home tomorrow. I believe I have an oncology appointment. After that I will be able to go. Just need the time for the appointment.
Firslty, you know where I will be - IN THE SHOWER. Gotta clean head before I leave because my home shower is inside bath. I won't be using shower in bath until I get some handles ;) ;).
Love you all
Sarah xxxx
Choosing senior schools already! Don't you just love each new stage. Happy hair wash for the morning. The girls will be so excited to have you home. You are such an inspiration to us all. Devoted homegroup to prayer & praise tonight. So good to have music back in your life. Love you too. Xxx
ReplyDeletep.s. Mary at Mallory Towers tonight. Thanking God I didn't lose Timmy!
Good morning all. I am wide awake at 0430. I do not need pain relief - my head is "achey" but not in agony. I want the time to pass but it won't. We joke on the ward that the clock goes round twice, and this is happening now. I can "go to sleep" and then wake and look at clock, and it will appear to have gone backwards. Time is inverted. It is 440 now...
ReplyDeleteLove you
It is the 4th July.
ReplyDeleteGood morning. Belly has woken us all telling nurse Tulie that she loves her. It is a joy :).
ReplyDeleteI am in pain. Back on the painkillers - 2 paracetemol and 2 codeine. My in-the-night awakeness passed and I have had more sleep. Love you. Sarah
I am sure you can work out that I meant Nelly, not Belly! Nelly loves nurse Tulia.
ReplyDeleteI am full of codeine, spaced out and now pain free. Phew. Trying to listen to ipod on random. Again, the music is stimulating emotionally. Truly amazing. S xxx